Marcia Galan

Marcia Galan

Marcia Galan lives in New York and has a background in counseling and learning disabilities, with experience in testing and diagnostics. Her daughter, Alena, was diagnosed with Mucopolysaccharidosis (MPS VI) in 2002. Fortunately, due to a special therapy, Alena was able to overcome the oft-deadly disease and is a thriving young adult.

From Abyss to Bliss

Wednesday, 10 May 2017
From Abyss to Bliss

It was January 24, 2002, just seven weeks after her adoption and beginning her new life in America, that my daughter Alena was diagnosed with Mucopolysaccharidosis (MPS). 

I felt as if I’d been run over by a train. It was the worst day of my life. I had no idea that her runny nose, her slight heart murmur, her small statute, her little hands, her big blue eyes, and that button nose held anything that could not be corrected or fixed. 

And, I did not know or understand the magnitude of what was to come.