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EP 975B - Gift of Participation: Making Informed Decisions about Volunteering for a Clinical Trial

Summary: Seventy percent of people have never, or rarely, considered a clinical trial as an option.
Air Date: 1/14/20
Duration: 26:33
Host: Michael Roizen, MD
Guest Bio: Ken Getz, Founder of CISCRP
Ken Getz is the founder of The Center for Information and Study on Clinical Research Participation (CISCRP) and chairs the board of directors. He is also an associate professor at the Center for the Study of Drug Development, Tufts University School of Medicine where he directs sponsored research programs on clinical development design optimization and operating models; CRO and investigative site management practices; and study volunteer trends and policies. In addition, Ken is the founder of CenterWatch, a leading publisher in the clinical trials industry and one of several companies that he has sold.

A well-known speaker at conferences, symposia, universities and corporations, Ken has published numerous articles and chapters in peer-review journals, books, and in the trade press. He is the author of two nationally recognized books for patients and their advocates (including The Gift of Participation: A Guide to Making Informed Decisions About Volunteering for a Clinical Trial), and the recipient of several awards for innovation and scholarship.

Ken has held a number of board appointments in the private and public sectors, including serving on the Institute of Medicine’s Clinical Research Roundtable, the DIA Foundation, the Consortium to Examine Clinical Research Ethics, and the Clinical Trials Transformation Initiative. 
EP 975B - Gift of Participation: Making Informed Decisions about Volunteering for a Clinical Trial
Clinical trials are essential to public health. Behind every new drug or other treatment option is a comprehensive study period that involves both medical researchers and volunteers. 

But, statistics reveal that 70 percent of people have never, or rarely, considered a clinical trial as an option.

Some of the reluctance may have to do with myths or misunderstandings. Questions that may deter participants include:

  • Why should I do it?
  • Are there side effects?
  • Will participation disrupt my job and affect my health coverage?
  • How far will I need to travel?
  • Will I receive the results of my clinical trial?
Ken Getz, founder of the Center for Information and Study on Clinical Research Participation (CISCRP), is working to turn participation numbers around. His book, THE GIFT OF PARTICIPATION: A Guide to Making Informed Decisions About Volunteering for a Clinical Trial, offers crucial information on what to expect, where to find trials, and questions to ask.

Listen as Ken joins Dr. Roizen to discuss clinical trials and provide more clarity to this life-changing and often life-saving option.

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