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EP 1045B - Talking with The President of the Tourettes Association of America

Summary: Studies have estimated that 1 of every 162 children (0.6%) have Tourette's Syndrome (TS).
Air Date: 5/25/21
Duration: 21:04
Host: Michael Roizen, MD
Guest Bio: Amanda Talty
Amanda Talty, CEO/President of The Tourette Association of America Brings over 15 years of experience developing and implementing strategic programs designed to spark organizational growth and sustainability. Under her leadership, Amanda has championed the development of programs and initiatives that have reduced organizational deficit by $1.3 million and increased fundraising revenue by 42%. As a result of her commitment to the individuals, families and supporting members of the Tourette Syndrome and Tic Disorder community, Amanda has played a tremendous role in helping the Association navigate new revenue streams through development of strategic priorities and partnerships that ensure the success and sustainability of the organization.

Prior to joining the Tourette Association of America, Amanda served as Senior Major Gift Officer at the American Red Cross on Long Island where she facilitated over $1 million in new revenue within the first year. Her development experience encompasses organizations big and small, public and private and she is passionate about bringing values to life through philanthropy. Amanda received her BA in Sociology and Communications from Hofstra University and her MPA from Baruch College.

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EP 1045B - Talking with The President of the Tourettes Association of America

Studies have estimated that 1 of every 162 children (0.6%) have Tourette's Syndrome (TS). A CDC study using parent reports found that 1 of every 360 (0.3%) children 6 – 17 years of age in the US have received a diagnosis of TS; this is about 138,000 children.

The Tourette Association of America (TAA) is working hard to increase social acceptance and tolerance for people with Tourette Syndrome. People with Tourette Syndrome have long been misunderstood and mocked for their uncontrollable symptoms which can lead to long-term effects on their mental health. It is estimated that 1 million Americans are living with Tourette Syndrome or a Tic Disorder – and an alarming 50% are going undiagnosed. The complexities of this disorder leave the community misunderstood, overlooked, and mocked for their uncontrollable symptoms.

Amanda Talty is the CEO/President of The Tourette Association of America and joins us today to tell us more about her role with the organization, working to reduce stigmas around Tourette's, ticks and picking up on possible signs of the syndrome in children. 

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